Things that irritate you - Part 2

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poffle

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ME/CFS. She already eats almost nothing. No natural or artificial sugars. So no fruits, sweet potato, bananas, carrots or as little as possible. No wheat, gluten and carbs. During treatment no dairy or any product wit dairy in. Fortunately she can eat meat. Yeah! /sigh

Tonight it will be coli-flower rice, green beans and red meat.

Hectic, i actually just saw "Affliction" on netflix last night and the 1st episode is a guy who just got ME/CFS out of nowhere, never really understood what it was until i saw it, and now you post this.

Strongs to both of you.

On the show the guy says he experiences pain all the time, like his senses are in overload, so talking hurts, moving hurts, sunlight/outside elements can cause pain... is hers to this extreme?

Scary to think that not even doctors know what causes this and how to treat it properly.
 

RedViking

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Hectic, i actually just saw "Affliction" on netflix last night and the 1st episode is a guy who just got ME/CFS out of nowhere, never really understood what it was until i saw it, and now you post this.

Strongs to both of you.

On the show the guy says he experiences pain all the time, like his senses are in overload, so talking hurts, moving hurts, sunlight/outside elements can cause pain... is hers to this extreme?

Scary to think that not even doctors know what causes this and how to treat it properly.

Fortunately she is not that bad yet but it was getting there if we didn't find help. Had it for 3 years now (that we realised something hectic is wrong) , we only found someone 6 months ago.

It seems to help with the brain fog and she doesn't forget so much anymore. Noises and sound is a big problem. Everything hurts. She gets pain in her hips that come and go so sometimes she can't really walk. The list is very long.

Found a lady that says they can treat some of the bacteria. Dr. Cécile Jadin. So we are following her treatment at the moment. It is basically just very strong antibiotics, so the medicine itself makes her very sick during treatment and has side effects.

The biggest struggle was not knowing what was going on and the doctors giving all the wrong stuff and the stuff they said hurt. This helped my wife a lot:

https://www.amazon.com/disease-called-fatigue-Cecile-Jadin-ebook/dp/B00ERB5AYY
 
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maumau

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OK, now I'm going to say it ... the coulda, woulda, shoulda articles we keep getting.

If might or may is in the headline what's the point of the article?????????

Apologies to biz bot, news bot, staff writer etc. etc.
 

Ho3n3r

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Apr 5, 2012
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OK, now I'm going to say it ... the coulda, woulda, shoulda articles we keep getting.

If might or may is in the headline what's the point of the article?????????

Apologies to biz bot, news bot, staff writer etc. etc.

No apologies needed - they need to be called out. It annoys the hell out of me. Every time the rand moves 3% in one direction, one of these bloody articles pop up out of nowhere, and I've never found that they serve any good purpose, nor is the conjecture found inside ever nearly accurate - and since it's conjecture based on what people may or may not think a few months down the line, it's highly pointless.
 

f2wohf

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Fortunately she is not that bad yet but it was getting there if we didn't find help. Had it for 3 years now (that we realised something hectic is wrong) , we only found someone 6 months ago.

It seems to help with the brain fog and she doesn't forget so much anymore. Noises and sound is a big problem. Everything hurts. She gets pain in her hips that come and go so sometimes she can't really walk. The list is very long.

Found a lady that says they can treat some of the bacteria. Dr. Cécile Jadin. So we are following her treatment at the moment. It is basically just very strong antibiotics, so the medicine itself makes her very sick during treatment and has side effects.

The biggest struggle was not knowing what was going on and the doctors giving all the wrong stuff and the stuff they said hurt. This helped my wife a lot:

https://www.amazon.com/disease-called-fatigue-Cecile-Jadin-ebook/dp/B00ERB5AYY

Sounds like a hectic disease to get. I'm almost glad I "only" had cancer that at least has known treatments.

All the best for both of you, hoping science cracks down on this affliction soon.
 

Lupus

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Apr 25, 2006
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50,982
Traffic again. So I'm now taking my son to school in the mornings, which means I've got to sit through the normal peak hour traffic. What I've learnt, traffic lights green is go, orange is go and red is also go if you can slip in quick enough. You're also apparently allowed to block entire intersections, drive between two lanes, not stop at traffic circles and of course just drive like a plonker.
The 6am crowd aren't like this, but man the later guys just have no regards.
 

Splinter

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6a3c33d73a231a545f2d20cdaf168697.jpg


40 foot standard container. Boats loaded nose to nose with 2 foot overlap and two upside down ontop the others

They call that a sport boat? I would have called it a sports dinghy.
 

f2wohf

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after everything else you went through? Eina!!!

There's roughly one year of side effects post transplant from being tired to heavy depression to plenty of skin diseases and up to kidney failure.

Each week is pretty much a new thing as your new immune system adjusts and it seems to settle after a year, only 9 months to go!
 

RedViking

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Feb 23, 2012
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58,161
Ah I see I see. Thanks for the info and Good luck mate!
Thanks!

Sounds like a hectic disease to get. I'm almost glad I "only" had cancer that at least has known treatments.

All the best for both of you, hoping science cracks down on this affliction soon.

For someone who is going trough his own hell, thanks. :)
 

RedViking

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Ah I see I see. Thanks for the info and Good luck mate!

Sounds like a hectic disease to get. I'm almost glad I "only" had cancer that at least has known treatments.

All the best for both of you, hoping science cracks down on this affliction soon.

There's roughly one year of side effects post transplant from being tired to heavy depression to plenty of skin diseases and up to kidney failure.

Each week is pretty much a new thing as your new immune system adjusts and it seems to settle after a year, only 9 months to go!

Sounds really rough. I can not imagine what you, my wife, my father (R.I.P), friends must go through. Here we are just as bystanders, trying to understand.
 

ArmatageShanks

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People who come in late.

Every damn morning and I'm sorry to say this but every morning the white people in our office arrive usually 10 - 15 min before they are supposed to be here where as the other crowd always rock up 15 - 20 min late.

If ask them about it they are dumbfounded, did their parent not teach punctuality or is that a "colonialist" thing

Had I been the manager they would have a written warning already.
 
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