Cholinergic Urticaria Treatments?

[Praemon]

I was wondering if anyone could offer some advice. I've been suffering from chronic cholinergic urticaria for about 6 months now. Basically I get lots of tiny little red spots, generally around my feet and wrists (although spreads across my body if I don't stop the activity causing them), that are very painful and are triggered by temperature changes, such as exercising, hot shower, being in the sun, or basically anything that elevates my temperature. It came out of the blue and has become quite debilitating, especially not being able to do any exercise. Has anyone suffered from something similar, and what worked for them? I've tried about six different anti-histamines, as well as combining them with beta-blockers, H2 antagonists and montelukast, but nothing has really made any real difference (not enough that I can exercise again without having a really bad reaction). I'm seeing another specialist for allergies in Septebember, but thought I'd try the forums in case anyone could offer up some other treatments in the meantime.

Thanks!

 

[mOOey]

Did you find something yet? I know someone with the same condition for the last three years now. He improved a lot since I gave him a bottle of Testoblast. If it sounds like a testosterone supplement, it's because it is. My reasoning is that, in this case, it wasn't dermatological, but a neurological condition probably brought on by low testosterone levels. He's been through all the allergy tests and also tried antihistamines. You also mentioned that it starts at the extremities which also points to a neurological disorder. I'm not involved in the medical field at all, so take it as something to try if you run out of ideas. You might as well get your testosterone checked and make sure that the result is actually normal for someone your age, because the minimum amount stated by the pathologist is for a 90yr old.

Keep me updated.

 

[Praemon]

Did you find something yet? I know someone with the same condition for the last three years now. He improved a lot since I gave him a bottle of Testoblast. If it sounds like a testosterone supplement, it's because it is. My reasoning is that, in this case, it wasn't dermatological, but a neurological condition probably brought on by low testosterone levels. He's been through all the allergy tests and also tried antihistamines. You also mentioned that it starts at the extremities which also points to a neurological disorder. I'm not involved in the medical field at all, so take it as something to try if you run out of ideas. You might as well get your testosterone checked and make sure that the result is actually normal for someone your age, because the minimum amount stated by the pathologist is for a 90yr old.

Keep me updated.

Interesting. Will mention that when I see the specialist in early September. Unfortunately I haven't found anything that has worked yet, so open to other possible treatments.

Thanks for the post.

 

[mOOey]

Brave of you. He's gonna laugh so hard at you, but after the initial fit he might just humour you and check it out. I know it's a biaaatch living with something like this. Hang in there. You would also get much relief from topical steroids or anesthetic creams, but you can't use it for prolonged periods and it does nothing to resolve the cause. It might just save your sanity for a while.

 

[silverfoxrox]

The same thing happened to me about 4 winters ago. Do you suspect anything that might have caused it?

For me, I think it was related to a series of bee/wasp stings. In the space of two weeks, I was stung twice at work. It was super bizarre because it was in the middle of winter in Stellenbosch. But I digress....for a couple months afterwards every time my body temperature was elevated I got those small, itchy bumps on my forearms and legs. Sometimes I would get big hives on my thighs.

Everytime I had a breakout, I think I just took an over-the-counter antihistamine. But eventually it just went away on its own (about 2 months).

That probably doesn't help you, but maybe it will get you thinking about things that may have triggered it?