Neuropathic back pain

reneg8or

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Jan 22, 2013
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I had a laminectomy L5-S1 in April 1994 and was saved from becoming a paraplegic. It was an emergency operation in a facility owned and managed by my employer.

Ever since, I had terrible back spams and intense pain, also limited mobility from time to time. Sometimes I cannot walk at all, sometimes only with an aid but for about a third of every year (if I add up the days) I can walk on my "hind legs" and not like a question mark. :D

Various doctors have treated me and the medication has always remained the same: amitryptyline 50mg at night, it once was 75mg but I had too many side effects and the doctor reduced it.

The spasms occur randomly and sometimes months pass without any ill effects and then, suddenly, I will have great difficulty even to get out of bed and walk.

Also, my neck and left arm are always numb and I sometimes drop things from that hand, as it loses grip. Twice I had a situation where my entire body would shake uncontrollable from the neck down, as if being electrocuted. (Maybe I can donate my organs to the factory that makes virbrating armchairs.) This happened way back in 2005 and never again.


Doctors don't answer my questions and I am a bit frustrated as this affects my quality of life.

Prior to my laminectomy, I was given Naprosyn that helped for the pain a little.


Anyone here have an alternative idea of how to effectively get the back muscles to stop tugging at my spine? I would love to yet again be an upright man in the community, at least one that kids can look up to! :D
 

Nanfeishen

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Did you, do you do any form of physical therapy or exercise ?
If not maybe consider some form of either.
 

reneg8or

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Did you, do you do any form of physical therapy or exercise ?
If not maybe consider some form of either.

I did go for biokenetics and physio, but the orthopaedic surgeon put an end to that when I showed him what excercises I've been doing.
 

Nanfeishen

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I did go for biokenetics and physio, but the orthopaedic surgeon put an end to that when I showed him what excercises I've been doing.

Well after that the surgeon should have given you exercises, sporting activities or at least a routine to do that he/she found appropriate, or not ?
 

reneg8or

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Well after that the surgeon should have given you exercises, sporting activities or at least a routine to do that he/she found appropriate, or not ?

Yes, he should have, of course. I do what I can and as much of it as possible, it is better than doing nothing, at least.
 

Nanfeishen

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Yes, he should have, of course. I do what I can and as much of it as possible, it is better than doing nothing, at least.

Good for you, exercise and lack of mobility are unfortunately always going to effect each other, as each improves or compounds the other.
 

RiaX

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Jul 2, 2012
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do some light yoga.

Look into the drugs baclofen and lyrica for drug relief

Well after that the surgeon should have given you exercises, sporting activities or at least a routine to do that he/she found appropriate, or not ?

that is not the surgeon's duty. Thats the treating doctor's duty to refer the patient to physiotherapy. You are only the surgeon's patient in theater
 

Grant

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Mar 27, 2007
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I had a laminectomy L5-S1 in April 1994 and was saved from becoming a paraplegic.

My mother also had to go through an "emergency" laminectomy in order to be saved from becoming a paraplegic.
Surgeon insisted that should surgery not take place the following day, she would never walk again.
Terrified, she agreed. Up until the day of surgery she had been able to walk / drive etc.
That was also the last time she was able to walk in her life.
Subsequent to surgery she was never able to stand again and has been in a wheelchair ever since.
 

reneg8or

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Jan 22, 2013
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468
My mother also had to go through an "emergency" laminectomy in order to be saved from becoming a paraplegic.
Surgeon insisted that should surgery not take place the following day, she would never walk again.
Terrified, she agreed. Up until the day of surgery she had been able to walk / drive etc.
That was also the last time she was able to walk in her life.
Subsequent to surgery she was never able to stand again and has been in a wheelchair ever since.

Terrible......as this almost happened to me. She sadly may have retained mobility had they operated sooner. Success in theatre never is guaranteed.
 
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