Vitiligo

RiaX said:
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before. Was testing various lasers hence the dressings

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now. After monobenzone + laser depigmentation
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Wow, thats a big difference. Mine is not nearly as bad as that. The thing that freaks me out is I have seen it on hands and when its light, it just makes the hands look dirty.

grantza said:
oi vey

you realise of course "visrot" has a whole foot fetish thread going strong some time back !!
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Thanks for reminding me. :erm:

Ockie said:
How interesting. I have seen many Indian people with this. I did not know white people also get it. I suppose it will just be less noticable. Yours is not bad at all madman, although your big toe looks eina?
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Yea its not bad at all. Its just spread a little in the last few months which is why Im a little concerned. Feet and legs are not an issue, but I would hate to get it on my hands or face.
I'm a borderline compulsive hand washer as it is, that would push me over the edge.

As for the big toe, its giving me hell at the moment. I have an appointment at the podiatrist this afternoon.
 
nfbs said:
Yours is pretty noticeable compared to mine.

Did it gradually increase in size or become whiter or or suddenly appear after sunburn or skin damage?

Mine has stayed constant for the past 3.5 years.
I do get sunburnt on those areas every so often and then it turns funky pink before after a long while turning white again so tanning doesn't help.
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It gradually increased in size over a year or so and then stayed static for about 5 years. The past few months I have seen some new spots.
If I spend a lot of time in the sun (without burning) they actually seem to fade. The first few times I'm in the sun after winter they look blaring white and then they fade a little over the summer. Its actually faded a bit in that pic already.
 
does it bother you? or your wife?
 
RiaX said:
does it bother you? or your wife?
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No. My uncle ended up with the stuff on his face tho, when he was in his 60's and thats the only thing that worries me. I used to think that it was static, but its not :(

MightyQuin said:
My eyes...OMG my eyes. When did you have that terrible accident that disfigured your toes like that?

Hehehe...
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yea, my toes have not been the happiest story either :p. I think I have broken all the toes on that foot except the big one, 3 of them at once. But hey, they all work most of the time and like they say about girlfriends.. ugly is better than none at all :D
 
Madman88 said:
No. My uncle ended up with the stuff on his face tho, when he was in his 60's and thats the only thing that worries me. I used to think that it was static, but its not :(



yea, my toes have not been the happiest story either :p. I think I have broken all the toes on that foot except the big one, 3 of them at once. But hey, they all work most of the time and like they say about girlfriends.. ugly is better than none at all :D
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Don't worry, my feet looks like the offspring of an armadillo that got drilled by a Nile croc...and finally ended up on an episode of Swamp Men.
 
No. My uncle ended up with the stuff on his face tho, when he was in his 60's and thats the only thing that worries me. I used to think that it was static, but its not
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well then you must decide whether its worth doing harsh treatments (that are uncomfortable) for something that really is harmless. In my case it was necessary.

I used to be treated like dirt because mine was so obvious, eventually I got fed up.

Its so amazing when you walking in the mall minding your own business and children come up to you and go "whats wrong with you" "why you so dirty" then the parents run and grab the child and run away no apology what so ever. Like I have ebola or something.

Oh used to love the nicknames as well. Patch. In school the girls would put tipex on their skin to mock me :/ ..... fun times

there is only so much ignoring one can do

EDIT:

now i get the MJ jokes. One lady thought i was Polish :wtf:
This one time this super racist guy was making a scene at a kiosk and he turns to me thinking im white and starts telling me how he hates black people and i'm like thinking to myself im not getting involved in this nonsense .... lol

but on the bright side at least my hair didnt get affected
 
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RiaX said:
6 months ... full body

Application of 20% monobenzone twice daily. Laser on heavily pigmented areas to accelerate the process

EDIT:

white people do get it but not much is known into treating them. The lesions can be pinkish or yellow. Most white patients dont bother to treat it and UVB or PUVA can be dangerous to whites. The skin is different gotta be realistic when its medicine

lol look like two different people eh
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Recommended by a dermatologist?
Which laser treatment?

Your face, I take it such a treatment isn't for such sensitive parts of your skin.
 
Dermatologists wont recommend it as the cream is not commercially available. Derms try to cure not accelerate they will do it on request though its a proper medical procedure. They are aware on how to do it so if you ask them then they will start the procedure. I used a luxG palomer laser to depigment dark areas (due to UVb i was actually very fair before I got vitiligo)

You can do every part of your body except the eye lids. The laser will damage your eyes and monobenzone in the eyes isnt very pleasant. You cant apply it on areas like the tip of the penis the anus or the vagina as well. Anywhere else is fine

EDIT:

I was one of the pioneer patients to actually depigment for this particular practice since the removal of the drug commercially. The professor of dermatology uses my pictures in her lectures.

apparently 5-methoxyphenol is superior to monobenzone but no one makes a genuine version anymore

I applied monobenzone to my face but i use a 10% cream for 4 months then a 20% there after. The palomer laser i left to the dermatologist's discretion I only have the knowledge to play with the monobenzone. They lasered by neck, forehead, cheeks but the eye area was avoided. Lucky for me my eyelids were naturally depigmented from the vitiligo like a mask lol
 
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They lasered by neck, forehead, cheeks but the eye area was avoided.
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So it just looks like you're really really tired?

Can this be used illegally in India for skin lightening?
 
abzo said:
So it just looks like you're really really tired?

Can this be used illegally in India for skin lightening?
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no my eyes naturally depigmented on its own. it was the first to go when I got vitiligo. it started as a patch the size of a 1c coin on my knee. We thought it was a fungal infection. Then it didnt go away after topical antifungals and it remained stagnant for years. Then suddenly it decided to spread. Within a year i lost over 30% the following year 80% was gone. My eyelids were the first to go after the knees.

i dont know what they use illegally in india. Something blue was the lightening cream. It contained corticosteroids. The high potency steroids thin the skin there by lightening it. Things like clobetasol. On a side note I had issues with black staff stealing my clobetasol to sell in the townships as a cosmetic. Ive never seen the state come down so hard and swiftly on a single person before.

Anyways my guess is they use hydroquinone and laser. Though its just a guess. Its extremely difficult to get a uniform depigmentation without vitiligo and yes MJ did have vitiligo (thats why he wore one glove to hide it he apparently had make up issues on the hand so he just put a glove on. Dont know how true that is though)

people have tried to use monobenzone illegally to lighten their skin. leaves them disfigured because its not a smooth removal. Vitiligo patients the immune systems smoothens the tone out
 
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I used to have spreading even patches around my eyes and eyelids. I went for UV therapy. And it went away. It's starting to come back again slowly though
 
Suspect99 said:
I used to have spreading even patches around my eyes and eyelids. I went for UV therapy. And it went away. It's starting to come back again slowly though
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did that. It always comes back. Its an autoimmune disease. Unless you plan to suppress your immune system, if your vitiligo is universal and/or rapid. There is no chance you will keep your colour. UVb works well for acrotic vitiligo. I always recommend patients to discuss it with their derms. For me after all the ubv, PUVA, soralins, off label roaccutane. It just came back. It cost so much to keep my skin colour it was far cheaper to get rid of it (relatively).

but its not risk free. I was lucky my depigmentation went so smoothly. When my derm (who is one of the best but i wont name him here out of courtesy) said i should start methotrexate or cyclosporine I declined and opted for depigmentation. i couldnt afford to be immunosuppressed and work in a drug resistant TB hospital.

EDIT:

another problem with vitiligo its extent of depigmentation its uniform bilaterally however the extent of depigmentation is random. No one knows why it stops and why it never depigments fully on its own
 
I didn't really have it bad. The light patches are a similar colour to my normal skin. It wasn't really noticeable until I started the treatment cos it darkened my skin. But if I go for a couple of weeks of treatment and it sorts me out for two years I can deal with that.
 
then if you cool with it then stick with it :)
 
I recently moved to Durban. Do you know anyone who has experience with this here?
You could Pm me if you don't want to put his details on a public forum
 
Done. Please be sensible on when it comes for depigmentation. unless almost all your body has gone white then consider it. It very hard to depigment when you still have most of your colour.

You also got to be aware of hyperpigmentation. Think really hard if its worth it. The treatment can backfire and leave you looking worse off. In my case I was already cosmetically disfigured due to the extent of my vitiligo, so it wasnt a factor.

Educate yourself and ensure your ask the dermatologist all the questions you need and LISTEN to them. I do not want to be responsible for anyone ending up disfigured

PROCEED AT YOUR OWN RISK

what ever happens cannot be reversed
 
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