Heart problems.

marco

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I have found that there is little or no support for people with heart problems in South Africa.

In the UK there is a support forum with about 20 000 active members and phone support where heart nurses are available 24/7.

I am particularly interested to hear from people with arrhythmias such as AFIB, AFLUTTER, palpitations and heart failure, ECG anomalies, bradycardia, heart block etc.
Thank you.
 
I disagree with your finding.
I'm receiving treatment from a public hospital. They have all the equipment, specialist doctors and nurses that work with heart problems.

I had my first ECG ever this year, due to a checkup my doctor did on me.
The test and results were processed on the spot.

If I am misunderstanding your concern, please correct me.
 
I disagree with your finding.
I'm receiving treatment from a public hospital. They have all the equipment, specialist doctors and nurses that work with heart problems.

I had my first ECG ever this year, due to a checkup my doctor did on me.
The test and results were processed on the spot.

If I am misunderstanding your concern, please correct me.

I think he's talking about forums.
I have tachycardia and also suffer from palpitations. It's no fun being constantly aware of your own heart beat :thumbsdown:
 
I think he's talking about forums.
I have tachycardia and also suffer from palpitations. It's no fun being constantly aware of your own heart beat :thumbsdown:
Sorry to hear and I do know the feeling.
I've been sick many times and have had the experience of heart palpitations and "feeling" it beat.
Mine is mainly due to anxiety and the wrong medications at the time.

I'm incorrect with what I said above.
It was my first ECG while I was aware of it, wide awake.
I'm sure they did something similar when I had hospital stays when I was out of it.
 
I have found that there is little or no support for people with heart problems in South Africa.

In the UK there is a support forum with about 20 000 active members and phone support where heart nurses are available 24/7.

I am particularly interested to hear from people with arrhythmias such as AFIB, AFLUTTER, palpitations and heart failure, ECG anomalies, bradycardia, heart block etc.
Thank you.

4x heart attack survivor here.

Sucks that you don't have the support you need in SA, but maybe look for something similar to https://www.bhf.org.uk (may be what you're referring to anyway) - they have forums and just about everything you'd need with regards to heart-related information. Borders may change, hearts don't. You may not be able to make use of the phone facilities, but all the information is for free.

I'm also a member of a couple of FB groups (not sure what your social media presence is like) - they're UK-based again, but I've seen several international ones.
 
I’ve just had an ablation procedure done to correct a tachycardia (palpitations) problem. The service and care from our doctors and hospitals was amazing.

What was lacking was easily finding info from South African sources online etc. most info in any self research came from overseas. But can’t complain about help/support from everyone including my GP upwards.
 
Thanks for that.

Had them all before I'd turned 40. Happened over 3 days, actually.
Really bad The Voice.
My grandfather passed away when I was a child. He suffered 8 heart attacks over a few days until his body gave in.
It's an intensely bad thing.
A few weeks ago a friend of my Mom's husband passed away at work from a heart attack as he was clocking off at work.

Really sad stuff.
 
Really bad The Voice.
My grandfather passed away when I was a child. He suffered 8 heart attacks over a few days until his body gave in.
It's an intensely bad thing.
A few weeks ago a friend of my Mom's husband passed away at work from a heart attack as he was clocking off at work.

Really sad stuff.

That's rough, sorry hear! Yeah, the sudden ones are still the worst. Prior to having mine I didn't really know all that much about HAs. Over the last couple of years since they happened I've done insane research - to try and extend my own life, as well as give me some peace of mind.

My type was similar to your grandfather's: there would've been warning signs possibly prior to them happening. The usual stuff like slowing down physically, feeling over-exerted while doing basic things, a sharp pain (angina) when climbing stairs, etc. They're all trying to tell you the heart muscle is suffocating. Then there's the other kind - the type that killed both my parents. Sudden. No warning signs. And instant death basically:

My dad died when I was 16. He was in the workshop at work one morning, and then suddenly just collapsed. He was 47. My mom had fallen asleep on the couch while watching TV on Christmas day. She shot up clutching her chest, and that was it. She was 64. They were both relatively "normal" and had never displayed the symptoms I did, that I'm aware of. Sure, they smoked and weren't super active. But no prior issues really.

It's also the type of HA the drops someone running a marathon, so there's no real way to avoid it, I don't think.
 
That's rough, sorry hear! Yeah, the sudden ones are still the worst. Prior to having mine I didn't really know all that much about HAs. Over the last couple of years since they happened I've done insane research - to try and extend my own life, as well as give me some peace of mind.

My type was similar to your grandfather's: there would've been warning signs possibly prior to them happening. The usual stuff like slowing down physically, feeling over-exerted while doing basic things, a sharp pain (angina) when climbing stairs, etc. They're all trying to tell you the heart muscle is suffocating. Then there's the other kind - the type that killed both my parents. Sudden. No warning signs. And instant death basically:

My dad died when I was 16. He was in the workshop at work one morning, and then suddenly just collapsed. He was 47. My mom had fallen asleep on the couch while watching TV on Christmas day. She shot shot up clutching her chest, and that was it. She was 64.
It''s a shame. Really sad.

We generally don't have much health issues in the family (except me and my mental illness).
The entire extended family is healthy and doing good.

My grandfather was over 80 and he suffered the HA's under sedation (in hospital)). So he didn't even know about it.
My own Dad died of cancer though, in 2017.

Either way. These type of illnesses are no joke. Many people don't have access to the correct info and don't do research as you've done.
So I believe they get hit much harder.

Thinking about it now. One of my Mom's brothers passed from a heart related issue due to alcohol abuse.
I never knew him however.
 
It''s a shame. Really sad.

We generally don't have much health issues in the family (except me and my mental illness).
The entire extended family is healthy and doing good.

My grandfather was over 80 and he suffered the HA's under sedation (in hospital)). So he didn't even know about it.
My own Dad died of cancer though, in 2017.

Either way. These type of illnesses are no joke. Many people don't have access to the correct info and don't do research as you've done.
So I believe they get hit much harder.

Thinking about it now. One of my Mom's brothers passed from a heart related issue due to alcohol abuse.
I never knew him however.
Yeah, the worst part I think is that the majority of people tend to simply ignore the symptoms until it's too late. I only just happened to go to the A&E that day because the hospital was right next to the train station I'd get off at on the way home from work. I'd already had the first 2 HAs the night before, and really didn't feel well but went to work anyway (I didn't even know I'd had HAs - it just felt like a rhino was sitting on my chest and that I'd had the worst heartburn I'd ever had x 9000 - and my jaw really hurt, which was weird). Luckily I did, because my left coronary was already 99% blocked, so when 3 & 4 happened in the ward the clotbusters had already started working their magic. If I'd just gone home like normal, I wouldn't be typing this.

One of the major causes is usually family history. But, I ignored that too somehow. It's definitely a good place to start, though, when trying to research everything.
 
Yeah, the worst part I think is that the majority of people tend to simply ignore the symptoms until it's too late. I only just happened to go to the A&E that day because the hospital was right next to the train station I'd get off at on the way home from work. I'd already had the first 2 HAs the night before, and really didn't feel well but went to work anyway (I didn't even know I'd had HAs - it just felt like a rhino was sitting on my chest and that I'd had the worst heartburn I'd ever had x 9000 - and my jaw really hurt, which was weird). Luckily I did, because my left coronary was already 99% blocked, so when 3 & 4 happened in the ward the clotbusters had already started working their magic. If I'd just gone home like normal, I wouldn't be typing this.

One of the major causes is usually family history. But, I ignored that too somehow. It's definitely a good place to start, though, when trying to research everything.
Really intense and I'm happy you are here to share your knowledge.
There's so many people that could be helped just by reading your experiences in this thread.

I'm unschooled in some medical procedures. You said that they had to do unclotting.
Is this while you are awake and aware?
Or is it only done by surgery?
Edit: SwiftKey testing my patience again.
 
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No problems on my side but that is the report from the physician I saw. Well he did hook me up on the threadmill and remarked that the heartrate raised quickly. Lack of exercise and general activity on my part but nothing to remark on the chart.

Dad and his siblings had a noteable history, with dad's first attack at 42, same age as me now. As a general mellow non smoker non drinker I felt prompted for the checkup following returning from quarantine, there was a period where it felt like my heart was too big for my chest and sleeping on my chest was painful. I remarked on acid reflux issues from 10 months back and that is what he treated me on.

I stressed the sharp pains but he was unconcerned. Perhaps it was Covid related. I am not being treated for heart issues but am on the alert for matching reports.
 
Really intense and I'm happy you are here to share your knowledge.
There's so many people that could be helped just by reading your experiences in this thread.

I'm unschooled in some medical procedures. You said that they had to do unclotting.
Is this while you are awake and aware?
Or is it only done by surgery?
Edit: SwiftKey testing my patience again.

Warning: this may be long and boring!

12 June 2018, just after midnight, I get this strange feeling in my chest. It's familiar, but different. Feels like the start of indigestion. It's uncomfortable, and I'm trying to fall asleep, so I swig some Gaviscon. The feeling doesn't go away. The discomfort becomes this burning feeling. It slowly ramps up over the course of an hour. It's literally the worst heartburn I've ever had at this stage. I drink more Gaviscon. I then start feeling this pressure on my chest. Like someone is standing on it. I think the most accurate way to describe it would be like one of those clips you see on the internet of someone putting rubber bands around a water melon. The more time passes, the more rubber bands are added, and the pressure ramps up. It feels like my chest cavity is being crushed from the inside. The pain has spread to my jawbone. It's this deep ache. I don't know what to do, my wife is still asleep next to me, so I drink more Gaviscon, and take some ibuprofen. About 2 hours have passed since it started, and the sleeping pill I took before bed finally kicks in.

12 June 2018, around 05:00, I am woken up by the same pain, now with all the symptoms at their maximum at once. More Gaviscon, more ibuprofen. I need to get up for work soon, so I go through my usual morning routine. By the time I leave, the pain is mostly gone, and the pressure has subsided for the most part. Later that day, I'm talking to my manager in the office, and I suddenly feel really out of it. It's past my knock-off time anyway, so I begin the 1.5 hour commute home. Before I pull into the final stop, a little voice in my head tells me "go to the A&E, just to make sure". I walk out the station, cross the road, and walk into the A&E at about 18:30. Seems quite busy. I begin to have second thoughts, but stick it out. My turn eventually comes, I explain the symptoms I had earlier, and that I don't feel so hot. I get told to take a seat in the triage area. Despite how busy it is, my name is called next. I get a lot of dirty looks! The triage nurse takes my BP, asks me really strange questions about family history of heart disease, etc. I then get taken to another waiting area. Again, it's packed, and again, my name is called first. The insert a cannula, take blood, and hook me up to an ECG. They get a reading, and tell me to wait outside again. Not long after, I get called back in to discuss the test results. They don't say anything about my blood, but say that they're going to take more in about an hour because the ECG is inconclusive (I found out later that the blood test is for troponin - the protein your heart muscle release into your blood stream when it's dying, i.e. having a heart attack. Mine was through the roof, but they were still thrown off because the ECG only has a 12-hour window, and it had already been over 13hrs since the last cardiac event). They take more blood, and inject something cold into my arm (I would find out later this was the "clotbuster": it thins blood, stops it from clotting and tries to dissolve any clots currently in your bloodstream). They tell me they need to keep me overnight for observation - I'm pissed off, because no-one has told me what's going with me yet, I'm tired, hungry and I just want to go home. I listen to my wife, and get taken to ACU.

13 June 2018, around 05:00, I get woken up by the pain again. I'm deur die kak, so to speak, and don't press the red button like the nurses told me to. 07:00, the nurses come round for the wake up call to give me more medicine (they already injected me in the abdomen with more clotbusters - which really ****ing hurt! - at around 03:00). They rip me a new one for not pressing the button (remember, at this stage they know what's happening to me - I still don't)! Later that morning, someone comes round to do an ultrasound (they're checking all the valves and chambers are still working properly). I get told I'm being moved to the specialist cardiac ward. I stay there overnight, and see a few mates I'd made in the ACU ward.

14 June 2018, I go for a dump with all the tubes and cables from the monitors still attached to me. I now have a drip attached, too. I guess it's the slight pressing that triggers something. I finish up, and head back to my bed. The pain is in full swing again. This time, I press the button. Three nurses rush over. One of them sprays something under my tongue. In about 5 mins, the pain is gone. Completely. Amazed, I ask what the hell kind of black magic that was?! Glyceryl trinitrate - it expands all your blood vessels at once. The nurses disappear, and a few minutes later, a cardiologist appears. "So, you've had 4 heart attacks. We've decided to skip the MRI, and go straight for the gold standard: an angioplasty". This is the first time since this all started on 12 June that I've been told what's wrong with me. About 30mins later, 2 paramedics arrive with a gurney, and tell me to hop on. I'm whisked away in an ambulance to cardiology at St George's hospital. It's a university hospital so I'm a bit nervous when I see all the students in the theatre. A doctor explains the procedure to me: they'll insert a tube into my wrist or groin (I chose wrist). They'll then pump ink into my arteries because they don't appear under X-Ray. They'll then feed a cable with a small balloon on the end all the way into my heart. Around it is a mesh scaffolding (a stent) that will press the obstruction flat against the artery wall when they inflate the balloon. This takes care of the blockage, and allows normal bloodflow to the heart to resume. There's just one catch, and I have to sign an indemnity form: there's about a 1% chance the procedure could kill me. I joke, and say "if I don't do this, I'll die anyway, right? Hand it over..."

The procedure is surreal, because you're awake the entire time. They make an incision in my wrist, and start feeding the tube into my arm. There's two screens showing the live X-Ray. I can see my heart beating on the screen. They zoom in a bit. They inject the ink, and with every beat, I can see it moving through the arteries in my heart. They then feed in the cable with the balloon and stent into my wrist, and carefully feed it all the way into my heart. About 45mins to 1hr later, they clamp up my wrist, and while I'm lying there, they explain everything to me: the left coronary artery (the big boy that feeds the heart) was 99% blocked. The stent was able to open it up almost completely again. They show me the before and after photos, and I'm shocked at the difference. I get taken away, stay in the recovery ward overnight, and get discharged the next morning with a lot of advice on how I'm going to have to live my new life (along with a lot of medication that I'll need to take for the rest of that life).
 
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@The Voice
That's really detailed. I'm squirming. Haha.

I hope it helps others.
I wouldn't be able to sit through that being awake. You're a tough Man.
 
@The Voice
That's really detailed. I'm squirming. Haha.

I hope it helps others.
I wouldn't be able to sit through that being awake. You're a tough Man.
Cheers, mate. Can honestly say that it wasn't a painful procedure at all. They use local anaesthetic at the entry point when they make the small incision. And then it's really weird while you feel the thing moving up your arm and then into your heart. And then, of course, the clamp they put around the wrist after hurts like hell - it's this weird inflatable wrist band thing that applies crazy pressure to the wound. Necessary, though, because my blood was already thinner than water and wasn't clotting.
 
I had strange heartbeat with tachycardia for many years.
In South Africa I was hospitalized a few times but spent nights on a gurney with an ECG until my heart reverted back to Normal Sinus Rhythm NSR. Then sent home with no diagnosis.
A week after arriving in the UK I was hospitalized for 2 weeks.
I had cameras up my wrist into my heart. Cameras up my butt and throat. MIR scans, blood tests etc. The whole tootie.

What I have is a common and benign Atrial Ventricle Node Re entry Tachycardia or AVNRT.

I have been on Flecainide since while waiting for an ablation to fix this.
Most people with Atrial Fibrillation (AFIB) or Atrial Flutter (AFlutter) are put on Flecainide that mostly stop these arrhythmias.
 
I had strange heartbeat with tachycardia for many years.
In South Africa I was hospitalized a few times but spent nights on a gurney with an ECG until my heart reverted back to Normal Sinus Rhythm NSR. Then sent home with no diagnosis.
A week after arriving in the UK I was hospitalized for 2 weeks.
I had cameras up my wrist into my heart. Cameras up my butt and throat. MIR scans, blood tests etc. The whole tootie.

What I have is a common and benign Atrial Ventricle Node Re entry Tachycardia or AVNRT.

I have been on Flecainide since while waiting for an ablation to fix this.
Most people with Atrial Fibrillation (AFIB) or Atrial Flutter (AFlutter) are put on Flecainide that mostly stop these arrhythmias.
Jeez, that sounds invasive.
 
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