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f2wohf

f2wohf

Honorary Master
Joined
Apr 15, 2014
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Quite happy with myself. For the first in months, I’ve produced letters excess of 10 pages without losing focus or being hammered by fatigue.
 
maumau

maumau

Honorary Master
Joined
Aug 13, 2009
Messages
20,267
f2wohf said:
Being done with apheresis. Hopefully for the last time ever.
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Your treatment is wildly interesting f2wohf, do you know how many other people are receiving it or are you one of a select few?

Love it when you keep us up to date and really hope you feel better.
 
f2wohf

f2wohf

Honorary Master
Joined
Apr 15, 2014
Messages
15,157
maumau said:
Your treatment is wildly interesting f2wohf, do you know how many other people are receiving it or are you one of a select few?

Love it when you keep us up to date and really hope you feel better.
Click to expand...

There are 2 hospitals doing it in SA, mine being the only one accredited internationally.

It's quite specific to lymphomas and leukemia and pretty damn expensive so only people on very good medical aids would be able to afford it.

In over a week at the hospital + 9 appointments, I've seen 4 people who had it done and I've seen 2 other people (one being a donor only and the other having a self transplant like me) having apheresis.

Even if they were fully booked for apheresis (doesn't seem they are since I had no waiting time), with 2 machines, 2 to 3 days per person and not doing it on week-ends or public holidays, they'd have maybe 200/300 patients per year.

The "gory" part (and painful as hell) of the treatment is over, I have 10 days at home to recover from the apheresis and will then get heavy dosis radiotherapy (never had so far), then heavy dose chemo (apparently it's hell, normal chemos are a walk in the part compared to it) to destroy fully my immune system.

Then, transplant where they put me back my stem cells + 2/3 weeks in isolation at hospital. Then I can go home and need to rest for a 100 days (no travels, restaurants, seeing kids, food restrictions, crowds or efforts).

I'll also start chemo again for 4 to 8 extra rounds (but that I'm used to it so it's almost the good part).

After that, sometime at the end of the year, I might be able to have a fully normal life again!
 
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Creag

Creag

The Boar's Rock
Joined
May 19, 2009
Messages
43,526
f2wohf said:
...

After that, sometime at the end of the year, I might be able to have a fully normal life again!
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Wishing all the very best, strength and determination on the road ahead. Vasbyt!
 
Rouxenator

Rouxenator

Dank meme lord
Joined
Oct 31, 2007
Messages
44,050
Seeing how a company I previously had work done at has grown and improved, and they still give great service. On top of that, the bench test on the stock A/C compressor of my car passed, so I have a legit spare. (and spent thousands on nothing)

IMG_20180504_202530.jpg

If you are in the Cape and need A/C work done, Cool Co is a good option.
 
f2wohf

f2wohf

Honorary Master
Joined
Apr 15, 2014
Messages
15,157
Remixed season 4 of Arrested Development on Netflix. I missed that.
 
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