Chronic Pain - any suggestions?

C

ChrisThomas

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Hey Everyone,

Not sure if there is even a solution to my problem anymore, and my psyche is starting to be affected by all this...

To cut a long story short,

I have had lower back pain for a few years now. I could tolerate it and was almost used to being in pain that it didn't bother me all too much... (My 2 lower discs are compressed but I am told there is not much that can be done for me at the moment as I am underweight due to a very active thyroid...)

I am 22 and I do have a rare chronic syndrome called Ehlors - Danlos syndrome, which is a connective tissue disorder where your body doesn't really know how to process collagen.

With this syndrome comes hyper-mobility, very stretchy skin and a lot of the time, quite a lot of pain flare ups.

Within the last 3 months however, things have gotten significantly worse, my entire back, and now legs are so sore that even walking through spar to get a few groceries is a massive task for me.

I used to do a few exercises to try to strengthen my naturally weakened core muscles but lately I can't bring myself to do so because I am in that much pain.

So I have been to many a doctor and have been prescribed many pain medications, anti inflammatories, but nothing works and I end up just not taking them, because all that would do is mess with my kidneys in the long run.

So to break down my more recent symptoms:

  • All over back pain
  • Leg pain (feels like I've run up a hill 10km for no reason)
  • Blurred vision
  • Confusion
  • Dizziness
  • Loss of balance
  • Overheating
  • Dry Mouth
  • Pins & needles
  • Basically everything hurts...

I've had numerous blood tests that all show up normal, ruled out lupus, and all types of arthritis.

Next step is to see a different neurologist, but the appointment I can get is over a month away...

If anyone has any suggestions for pain management I would really appreciate it, I fear that I may end up having to give up my job if this continues and I am really quite down about it.
 
I wish our technology was advanced enough so that you could get something like this....

c-concept1a.jpg
 
The known pain killers....

Aspirin - hard on the stomach lining
Ibuprofen - same as above
Paracetamol - hard on the liver
Opioids - Addictive
Benzos - Also addictive

Natural pain killers - don't know of any that really work.
 
If you've tried everything you could give fermented foods a try. Be sure to buy the proper ferments, i.e. sauerkraut from Jacksons Real Food Market in Bryanston and start with a very small amount to see if you get a reaction.

EDIT: Suggesting ferments because that's my plak (sp?) at the moment - that and purified water. Buying a Berkey water purifier this week.
 
My wife and her sister have similar conditions.
Sister in law sawa neurologist, who then used some electro therapy in order to basically kill some nerve endings in the effected region o her spine.
she was walking fine for about two months, then something happened and she had back pain again.

my wife's problem is not as bad due to other conditions (or her simply being tough as nails) but on really bad days all she can do is rest her back, take epsom salt baths to stretch and relax the mustles and tendons, that then lestens the impact on her spine.

I also have another Friend I have known for a few years who also has a similar condition. and he smokes 10 to 15 joints a day to manage his pain.
and yes, he is a stoner, but when him and my wife speak about the symptoms, I realized he was not faking it, there are things he spoke about that only someone who experience that kind of pain can understand.

two things.
Do not give up on the stretching and core mustle strengthening. I believe that is what is the main difference between my wife and her sister, years of ballet my wife did.
second, try getting Cannabis oils. if the stoner friend gets good oils he lasts 2 days without smoking at all. but he does use the oil every hour or so. and he is not stoned from the oils at all, trust me I have known the guy for years, seeing him not stoned really stands out.
 
Baxteen said:
My wife and her sister have similar conditions.
Sister in law sawa neurologist, who then used some electro therapy in order to basically kill some nerve endings in the effected region o her spine.
she was walking fine for about two months, then something happened and she had back pain again.

my wife's problem is not as bad due to other conditions (or her simply being tough as nails) but on really bad days all she can do is rest her back, take epsom salt baths to stretch and relax the mustles and tendons, that then lestens the impact on her spine.

I also have another Friend I have known for a few years who also has a similar condition. and he smokes 10 to 15 joints a day to manage his pain.
and yes, he is a stoner, but when him and my wife speak about the symptoms, I realized he was not faking it, there are things he spoke about that only someone who experience that kind of pain can understand.

two things.
Do not give up on the stretching and core mustle strengthening. I believe that is what is the main difference between my wife and her sister, years of ballet my wife did.
second, try getting Cannabis oils. if the stoner friend gets good oils he lasts 2 days without smoking at all. but he does use the oil every hour or so. and he is not stoned from the oils at all, trust me I have known the guy for years, seeing him not stoned really stands out.
Click to expand...

Thanks man! Yeah I will concur, I think women handle pain slightly better than us, and don't bitch about it as much either hehe...

I have recently started on the cannabis oil capsules, but these ones still have the THC in them so I can only take them at night, so I am on the lookout for some of the "CBD" oils?

Yeah I have had my stomach lining practically burnt through before, and I suffer massive reflux to boot, so the heavy medications cause as many problems as they solve....

It's just frustrating, I used to be active, happy, never let anything get to me.... I'm too young to be living like this you know... I barely leave the house other than going to the office...
 
Pain down your legs and in your buttocks is usually a sign that you have a herniated disc and it it compressing your sciatic nerve. Because it is deffered pain it hurts in your legs. Commonly in thousands of people it starts with the C1/S5 vertebrae. Can't say what the rest of your symptoms are.
 
ChrisThomas said:
Thanks man! Yeah I will concur, I think women handle pain slightly better than us, and don't bitch about it as much either hehe...

I have recently started on the cannabis oil capsules, but these ones still have the THC in them so I can only take them at night, so I am on the lookout for some of the "CBD" oils?

Yeah I have had my stomach lining practically burnt through before, and I suffer massive reflux to boot, so the heavy medications cause as many problems as they solve....

It's just frustrating, I used to be active, happy, never let anything get to me.... I'm too young to be living like this you know... I barely leave the house other than going to the office...
Click to expand...

definately looking for CDB based oils instead of THC based ones.
and you want the pure oil not the tablets. a few drops on the tongue and you are good to go.
 
LazyLion said:
The known pain killers....

Aspirin - hard on the stomach lining
Ibuprofen - same as above
Paracetamol - hard on the liver
Opioids - Addictive
Benzos - Also addictive

Natural pain killers - don't know of any that really work.
Click to expand...
I once went on a whiskey diet, I lost 7 days.Not sure you would call it a natural pain killer but alcohol as far as I aware do inhibit the pain receptors..:D
 
ChrisThomas said:
Yup that about sums it up, and the surprising thing is that most doctors I've been to have no idea what it is, or more annoyingly, pretend to know what I am talking about and then, no jokes, google it while I'm in the room... :wtf:
Click to expand...

also, think about it like this. there are hundreds of thousands of conditions out there, and some of them are rare and obscure.

as a developer I still google things I do less often, just to be 100% sure. you can expect a doctor to know every single condition out there off the top of their head.
 
Baxteen said:
also, think about it like this. there are hundreds of thousands of conditions out there, and some of them are rare and obscure.

as a developer I still google things I do less often, just to be 100% sure. you can expect a doctor to know every single condition out there off the top of their head.
Click to expand...

Of course, I never go in expecting them to know about it, but get annoyed when they pretend to know and do a quick google... Rather just be honest and say that I should look elsewhere...
 
If your pain is inflammation-related, you can get quite far by avoiding foods that trigger inflammation. For me, cutting carbs and eating LCHF helps a lot with inflammation-related pain in my back and hips.
 
3WA said:
If your pain is inflammation-related, you can get quite far by avoiding foods that trigger inflammation. For me, cutting carbs and eating LCHF helps a lot with inflammation-related pain in my back and hips.
Click to expand...

There you go. Diet plays a huge part in inflammation and pain control.

OP says he has acid reflux, most people take antacid tablets which is quite the wrong thing to do. Sufferers don't have enough stomach acid to digest their food so upping the acid is the way to go, not suppressing it.
 
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