Dementia is a beatch

This is going to be me one day................lol okay not the pregnant part.......Wonder if it is selfish to want something else to take her before she gets to that stage...... Not knowing who you are, I don't think I will be able to handle it....

 
Yeah so much for smooth sailing.....lol. Warmer weather has her in a new cycle, and it is the one I had in my first post, where she is the absolute worse.......Absolutely lost my shyte.....

Not sure how much more I can take.....Will have to start being a dick for my sanity............
 
Yeah so much for smooth sailing.....lol. Warmer weather has her in a new cycle, and it is the one I had in my first post, where she is the absolute worse.......Absolutely lost my shyte.....

Not sure how much more I can take.....Will have to start being a dick for my sanity............
You should not have to go through this.
 
In this video, Dr. Paul Mason talks about dementia.


She went for a CT/MRI scan, Frontotemporal dementia, there is no cure, his report also shows no reversal able cause, it is something she has had for quite a while actually, just moved to the next stage where it was more noticeable.

It is the same as Bruce Willis, you can only to some extend manage the symptoms, nothing much you can do, life expectancy is about 5 years, quite possibly less as she had it for a while. Now that I have become aware of it a lot of things make sense from the last 3-4 years.


And yes I am at risk as well.....It is a genetic thing, you can perhaps delay the onset a little, but you can't avoid it nor treat it.

Symptoms and Causes​

What are the symptoms?​

The symptoms of FTD depend on the affected parts of the brain. Even among identical twins, no two brains are the same, so FTD affects everyone differently. Many of the symptoms are similar, but they often happen in different combinations, or they might be more or less severe.
The symptoms of bvFTD fall under six categories:
  • Loss of inhibitions.
  • Apathy.
  • Loss of empathy.
  • Compulsive behaviors.
  • Changes in diet or mouth-centered behaviors.
  • Loss of executive function.

Loss of inhibitions​

Inhibition is when your brain tells you not to do something. Losing your inhibitions because of frontal lobe deterioration can look like any of the following:
  • Loss of the “filter” for what you say. When this happens, you might say hurtful, rude or offensive things. For some people, this can seem like a major personality shift.
  • Lack of respect for others. This often involves getting too close to people (ignoring their personal space) or touching them in unwelcome ways. Inappropriate sexual comments or actions are also common.
  • Impulsive actions and behaviors. These are usually risky behaviors, such as reckless gambling or spending. Criminal behaviors like shoplifting are also possible.

Apathy​

Healthcare providers commonly mistake apathy for depression because the two have many similarities. Apathy tends to look like the following:
  • Loss of motivation.
  • Social isolation.
  • Decline in self-care and hygiene.

Loss of empathy​

People who have a loss of empathy (sometimes known as “emotional blunting”) may have trouble reading the emotions of others. That may look like they’re behaving in a cold, unfeeling or uncaring way.

Compulsive behaviors​

People with FTD often behave in noticeably different ways from people without this condition. Sometimes, behavior changes are small and happen in very limited ways. For others, the changes might be more complicated, involving multiple steps or a strict routine. Some examples include:
  • Repetitive motions. People with FTD often repeat small-scale movements, such as clapping their hands, tapping their feet, pacing, etc.
  • Complex or ritual-like behaviors. Compulsively watching the same movies, reading the same books or collecting types of items. Hoarding items also falls under this category.
  • Speech repetition. A person with FTD may repeat the same sounds, words or phrases.

Changes in diet or mouth-centered behaviors​

People with FTD often have a symptom known as "hyperorality," which means they overeat, eat things that aren’t food (this is a condition known as pica), or have mouth-centered compulsive behaviors (like smoking or using their mouth to feel things in a way similar to normal exploring behavior in babies).

Loss of executive function without losing other abilities​

Executive function is your ability to plan and solve problems, stay organized and motivate yourself to carry out tasks. People with FTD have trouble with executive function, but other abilities like how you process what you see and your memory aren’t affected until later stages of the disease.

Primary progressive aphasia​

There are three main subtypes of PPA, two of which can happen with FTD:
  • Nonfluent variant (nfvPPA). This type involves problems with grammar and forming words. Individual words and simple sentences are understandable, but complicated sentences could cause confusion.
  • Semantic variant primary progressive aphasia (svPPA). This type involves problems with choosing and understanding words. People with this often say things that don't make sense or can't understand what other people are saying.
 
She went for a CT/MRI scan, Frontotemporal dementia, there is no cure, his report also shows no reversal able cause, it is something she has had for quite a while actually, just moved to the next stage where it was more noticeable.

It is the same as Bruce Willis, you can only to some extend manage the symptoms, nothing much you can do, life expectancy is about 5 years, quite possibly less as she had it for a while. Now that I have become aware of it a lot of things make sense from the last 3-4 years.


And yes I am at risk as well.....It is a genetic thing, you can perhaps delay the onset a little, but you can't avoid it nor treat it.
Okay
 
Lol I know you trying to help. :). Just pointing out I did get an official diagnoses...... So it isn't like i haven't done my research and stuff, considering I am her primary care giver....

in fact the issue I am having with her now is her diet..... she craves carbs and sugar, which is pretty normal for a dementia patient, so had to find workaround to her favorite things to eat. Which at the moment is chicken so the easiest way to get her to eat other food groups is making chicken a la king with veggies cut in tiny pieces, and alternating between rice, pasta and potatoes....

She has also taken a liking to chicken livers lately.....So diet wise I am of top off it, It is also soft foods she can easily eat and she has supplements and the doctor prescribed neurobion among other things.
 
This is not about an all beef diet. To prevent dementia, all you need is to
eliminate sugar, refined carbohydrates, and seed oils from your diet.
Be careful now that you don't offend the many fatsos in this forum. Some would rather die than deny themselves sugar.
 
Is the advice to ditch sugar, refined carbs, and seed oils from your diet crackpot science?
Do you have a medical degree? UNLESS YOU ARE CARING FOR SOMEONE WITH DEMENTIA HOW ABOUT YOU HAVE A CUP OF SHUT THE HELL UP, BRO.........

you don't have a cooking clue what you are talking about....on ignore you go.
 
Do you have a medical degree? UNLESS YOU ARE CARING FOR SOMEONE WITH DEMENTIA HOW ABOUT YOU HAVE A CUP OF SHUT THE HELL UP, BRO.........

you don't have a cooking clue what you are talking about....on ignore you go.
Dr. Paul Mason have a medical degree.

I am honoured to be on your ignore list.
 
This is not about an all beef diet. To prevent dementia, all you need is to
eliminate sugar, refined carbohydrates, and seed oils from your diet.
Sorry but this is bollocks. Dementia cannot be prevented.
 
Be careful now that you don't offend the many fatsos in this forum. Some would rather die than deny themselves sugar.
Actually if he knew something about something.....However much you want to cut things out, you can only limit it, she already has artificial sweeter in breakfast foods and coffee tea and drinks.

And you don't exactly give her a bag of sweets, because of dementia you have to portion foods. They are prone to over eating, it is extremely helpful having snacks around, even if processed. They physically lose the ability to know when they are full, you can offer them food and they will eat and offer them food again 5 minutes later and they will eat again.

Also they entirely lost ALL inhibitions, you manage it by giving them what they want they rather settle for a hard candy, cream cracker with cheese a biscuit, or small portion nik naks, toast and coffee or whatever. Keep them happy and cooperative.....

Keeping their moods, wants, a carves in check is far easier, and portioning what they get, results in not having a mental breakdown.

This mothertrucker thinks he knows better, but he knows fckall, yes it isn't ideal but you make do with what works. You trying handling and managing a dementia patient, we can have a chat afterwards. For the better part of two years I have been cleaning her shyte and piss, and only recently forced to use nappies. People think they know, they know absolutely nothing, people with first hand accounts will tell you it is the worse exprience in their life.

Children that had parents with dementia that they cared for, have taken their own lives, it is a miserable existence..........and a constant battle till you learn to manage and tweak and work with the nuances of dementia and then still you going to end up with days where you are hit with every possible obsticle on the way down.........

Easier just to put him on ignore, why deal with wanna be nutritional science experts that think they know better, you deal with a dementia patient 24/7 and see how well you do at the end of the day...........lol
 
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