RogueTr00per
Honorary Master
Should u call an EMS service even if the hospital/clinic is about 5 minutes drive away and one could drive the affected person oneself?
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Stroke's No Joke!
- Thread starter medicnick83
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Sorry to hear that Rands. Keep strong, its a hard long road.
My dad is now home. My old lady is taking serious strain so we got a caregiver in to help out. He is slowly getting feeling and use of his arm and leg but progress is slow.
Luckily his mind is still perfect.
MickeyD
RIP
Vasbyt. Well done so far, especially with getting support for your mother.
Another important point to remember... did the specialists give you an idea of your dad's final recovery level? My sister's was 70% movement and 75% mental capacities. While we always hope and pray for more, the reality must be accepted and we have to adjust our relationship accordingly. She is walking unaided (slowly) but has memory loss and concentration issues.
Never give up.
MikeyD, they never really told us, or at least not myself. But I am guessing he will never be able to use his arm properly. He is showing improvement in his leg and was able to walk aided for a few steps the other day. So its not complete doom and gloom. Only issue now is he has started smoking again. I fear that if he has another stroke he won't be so lucky the next time.
DarthCat
Expert Member
my dad died with a stroke
wrathex
Expert Member
My mom had a stroke 7 years ago, she is paralized on her right side and is bedridden, she has never regained speech.
She was in a state 'place' for one week, then my dad took her out, because he could not take the low level of care and the low standards of hygiene, my mom was given bread to eat out of plastic cat bowl.
So my dad has been taking care of my mom, and my mom is also a big woman, my dad is small and exhausted and he needs a break, they are in Mpumulanga. My mom refuses to travel.
It's sad state of affairs, as my mom is mentally normal, and thus a prisoner of a broken body.
She was in a state 'place' for one week, then my dad took her out, because he could not take the low level of care and the low standards of hygiene, my mom was given bread to eat out of plastic cat bowl.
So my dad has been taking care of my mom, and my mom is also a big woman, my dad is small and exhausted and he needs a break, they are in Mpumulanga. My mom refuses to travel.
It's sad state of affairs, as my mom is mentally normal, and thus a prisoner of a broken body.
kimbo
Expert Member
Hi
Just more than ten years ago I got sick and the doctors did not know what was wrong. I was in hosp for three months and every time they tried some other medication I had a stroke
I was diagnosed with Behcets syndrome (see my sig)
We are about ten in south Africa with Behcets (that I know of)
So three months, four strokes and ten years later here I am. The neurologist told me the strokes affected my motor skills, balance, mostly my left side and my right eye vision
When the stroke sets on it is weird, it is like auto pilot is just starting to switch of some parts of your body.
Now you can’t walk, then speech goes and before long all you can do I lie in bed not able to tell the nurse you have a splitting head ach or just ask for some water
What I wanted to get at, it’s not fun. If you can reduce your risk of a stroke please do it
Just more than ten years ago I got sick and the doctors did not know what was wrong. I was in hosp for three months and every time they tried some other medication I had a stroke
I was diagnosed with Behcets syndrome (see my sig)
We are about ten in south Africa with Behcets (that I know of)
So three months, four strokes and ten years later here I am. The neurologist told me the strokes affected my motor skills, balance, mostly my left side and my right eye vision
When the stroke sets on it is weird, it is like auto pilot is just starting to switch of some parts of your body.
Now you can’t walk, then speech goes and before long all you can do I lie in bed not able to tell the nurse you have a splitting head ach or just ask for some water
What I wanted to get at, it’s not fun. If you can reduce your risk of a stroke please do it
kimbo
Expert Member
Tx DJ
Ja well i was 26 when this happned. To give up on a life you planned and walk a different road is not lekka. But i made the best of it. I started a support group on FB and trough the website i am trying to help. But with so little known bout Bechets in SA it is difficult.
And funding does not happen if you dont have a NPO so all this i am trying on a sosial grant
But back to your question .. The first is panic, but soon auto pillot over rides that one and you just, i can almost say, sit back and take a ride.
I remember telling the gent next to me in the hosp if i cant talk the next day he must please tell the dr i have a big head ach
I realy dont mind questions. We learn from them and i had an experiance not allot of ppl can share
kimbo
Expert Member
Yes
Auto pilot takes the panic. Apart from your head killing you i cant think of any pain or so. Parts just stop working. It is actually amazing how calm you are
Auto pilot takes the panic. Apart from your head killing you i cant think of any pain or so. Parts just stop working. It is actually amazing how calm you are
Incredible. Thanks for sharing. I always imagined it to be a little more violent as it feels like multiple short-circuits in the brain. Were you calm the first time it happened and have subsequently come to know to calm yourself?
kimbo
Expert Member
Your first instinct is to fight what is happening, but very soon, it sounds clishe’iesh, this calmness comes over you and you just give in. I just realized that I must just roll with the punches auto pilot is shutting down for a reason.
Later I read that behcets is an auto immune disease so basically your immune system gets all funny and attacks your body. It started at my brain stem hence my lack of motor skills. I think if auto pilot did not shut down most parts I would have been worse of today. Some parts did not start again and some did start just not fully.
I know I have a skewed outlook on this but I recon auto pilot is there in most extreme cases and if he fails , you fail
Live your life so that you do not force the hand of auto pilot so that he can maybe save whatever is left
Later I read that behcets is an auto immune disease so basically your immune system gets all funny and attacks your body. It started at my brain stem hence my lack of motor skills. I think if auto pilot did not shut down most parts I would have been worse of today. Some parts did not start again and some did start just not fully.
I know I have a skewed outlook on this but I recon auto pilot is there in most extreme cases and if he fails , you fail
Live your life so that you do not force the hand of auto pilot so that he can maybe save whatever is left
I had a blood test done and it was found that my blood was thick. The Doc said that I was a good candidate for a stroke and must take Dispirin every day.
That was 2 years ago and I stopped smoking since but use e cigarettes and still take Dispirin every day.
Went back for bloodwork some months ago and it came back normal even though I stopped taking Dispirin 4 days beforehand.
If you are over 50 then it is very important to take half a 300mg (blue box) pd. No more as it can cause excessive bleeding if in an accident.
Obama has asked the FDA to allow seniors to get Dispirin for free as it will save the states billions pa in stroke related expenses.
So seniors. Take your Dispirin.
That was 2 years ago and I stopped smoking since but use e cigarettes and still take Dispirin every day.
Went back for bloodwork some months ago and it came back normal even though I stopped taking Dispirin 4 days beforehand.
If you are over 50 then it is very important to take half a 300mg (blue box) pd. No more as it can cause excessive bleeding if in an accident.
Obama has asked the FDA to allow seniors to get Dispirin for free as it will save the states billions pa in stroke related expenses.
So seniors. Take your Dispirin.
medicnick83
Paramedic
I want to remind you guys about this thread - going for check ups at your nearest GP / Doctor - come on guys! I know you all lead lovely busy lifestyles but do not neglect your health.
+1. And seriously take the doctors advice. If he says you need to change something in your lifestyle DO it.
This is very fascinating to read. A relative has suffered a stroke several years ago but it was a large one. She was found a few hours later and by then didn't seem aware of what was going on. She has not been able to recall anything afterwards so I had no idea what a stroke would actually feel like. I am well aware of its consequences though I'm afraid.
Indeed. I did and almost kicked the bucket
I could be a candidate for a stroke because my Blood Pressure was tested last week and found to be 149/89, needless to say my family are worried and trying to get me to change my lifestyle but it's not that easy.
Makron
Well-Known Member
Taking is easy
I had another stroke two weeks ago.
I don't remember the 24 hours during or after.
I had sent my cancer buddy this sms:
jjjambbkmm help
He understood, called an ambulance, raced to my place, fortunately he lives close by,
called my sister who lives even closer. (he has experienced several of my strokes)
They they found me hallucinating, sitting on my bed naked, fumbling with my hands (eating imaginary ice cream).
They quickly dressed me before for the ambulance guys arrived, into my pyjamas.
They said at times at was lucid and and at times not.. .. I remember nothing at all.
A whole day and night had passed lol.
I have lost my right eye completely, it shutdown permanently a month ago, eyelid is completely shut.
I sleep a lot and other times and I over active. My total vision is deteriorating, I feel a growing pressure behind my right eye. I have headaches, aches and pains I have lots of back ache, but I have painkillers and valiums too.
I enjoy swimming, watering the garden, making double thick coffee shakes, the blue blue sky, early morning bird song, I lie on the couch falling asleep in front of tv, most National Geographic Wild. I wear mostly pyjamas, I do what a want at whatever hours suit me.
I had another stroke two weeks ago.
I don't remember the 24 hours during or after.
I had sent my cancer buddy this sms:
jjjambbkmm help
He understood, called an ambulance, raced to my place, fortunately he lives close by,
called my sister who lives even closer. (he has experienced several of my strokes)
They they found me hallucinating, sitting on my bed naked, fumbling with my hands (eating imaginary ice cream).
They quickly dressed me before for the ambulance guys arrived, into my pyjamas.
They said at times at was lucid and and at times not.. .. I remember nothing at all.
A whole day and night had passed lol.
I have lost my right eye completely, it shutdown permanently a month ago, eyelid is completely shut.
I sleep a lot and other times and I over active. My total vision is deteriorating, I feel a growing pressure behind my right eye. I have headaches, aches and pains I have lots of back ache, but I have painkillers and valiums too.
I enjoy swimming, watering the garden, making double thick coffee shakes, the blue blue sky, early morning bird song, I lie on the couch falling asleep in front of tv, most National Geographic Wild. I wear mostly pyjamas, I do what a want at whatever hours suit me.