Probably working on people`s perceptions to take some stigmata away. Its almost 100% terminal. Sure you can live a little longer now, but its not like diabetes like theyre trying to con people that it is like.
I see they have extended life spans from 7 years to 24 years though.
It's stigma not stigmata but anyway if you actually tell people "you will die from this infection", maybe people will notice but to tell them it will be ok and you can live forever or it's a change of life yada yada yada people will not take you serious.