Hey Toxxyc. I've been where you are and the first thing to realize is you are not alone AND ITS NOT YOUR FAULT! That last may sound silly but it is extremely important, seven years down the line my wife still questions her worth around this. You obviously have a pead and the NICU nurses to assist you and they will be some of the greatest folks you ever meet as it takes quite a special kind of person to work in that unit. Can I ask why your son in in the unit? Was he prem? Or was it a normal birth with issues in lung development? Is he on ventilator, cpap or just oxygen? Whats his average saturation like?
Besides those questions, I can say it is a time you get over and we are seven years beyond hours but here is my best advice about having a child in the NICU:
1. Breast milk is SUPER important. Yes you can have formula and yes you can get the meal replacement ( can't recall the funny name now ) but breast milk is the best thing for the child, regardless whether feeding is done off breast, bottle or tube.
2. Kangaroo care if possible. We saw it and there are many many records of kangaroo care helping a child in the NICU. That child is more scared than one can imagine, being thrust now into the world and suffering whereas before it was warm, floating and easy.
3. Take it a day at a time. You will have good days and bad days and they should pass.
If you feel like talking directly, pm me but its not a bad idea to share you experience with a broader audience. You will be amazed how many other folks have gone through what you have.
Regards
Kosmik
Father of two
1 @ birth 740grms, 26 week birth , 85 day NICU stay, now 6 years old
2 perfectly normal 2.7kg boy, now 4 years old.
Ey man, yeah we're not alone, thankfully! He's in the NICU because he struggled to get his saturation up after birth. He was born from a gestational diabetes mother with a c-section. He swallowed water at birth, struggled to get it all out and then picked up an infection. He's been in there for just over a week now (16:00 today marks 8 days). He simply isn't coming off the oxygen. We was born at 38 weeks, according to our measurements, although the pead now thinks he might have been closer to 37 weeks at the time. There hasn't been a need for CPAP or ventilator yet, but he's on his 3rd course of antibiotics now. They took him off oxygen again yesterday morning and he coped well until late this morning when he desaturated again.
His avg saturation is around 93% now, if I have to guess, but it keeps dropping from time to time. He does recover, but sometimes it takes too long and it's nerve-wrecking experience when that happens. He also had a mild case of jaundice (which I'm not too worried about).
Right now we're there as much as possible. My wife breastfeeds when she's there, and pumps for nighttime feeds when she's not. There's not a shortage of milk yet, so that's good news. We're trying the Kangaroo thing but the pead also said that it's more helpful in preemies, and for him it'll just be comfort, so we just hold him while we're there.
Oh, he also has sinus issues, so that worsens the saturation issue, and he also has apnea, so we have to get a monitor for him (already ordered).
PS I know it's not our fault, but my dudes, it's hard coping with this. I'm struggling to eat, I barely sleep and when I do sleep I dream so vividly I'm awake every half hour. Emotionally I'm a wreck - I just take a look at one of his pictures and I have to choke back tears, even in the office. I can only imagine what my wife's going through - on top of her hormones and everything being all over the place right now.
EDIT: Oh, about his saturation, when they took him off first time it spent most of it's time under 90 - so not good. On LIGHT O2 (like 25%), his saturation is at 98~100 all the time, so this is that last stretch, but that's the last bit of stretching we're having so much difficulty with right now.